Journey of a Lifetime (JOL)

Coordinating care for babies with a perinatal diagnosis.

Book an Appointment

Book an Appointment

Book An Appointment

JOL's services are provided at no charge to parents facing a life-limiting or adverse perinatal diagnosis.

JOL's services are provided at no charge to parents facing a life-limiting or adverse perinatal diagnosis.

JOL's support is focused on a Trauma Informed Care (TIC) approach.

JOL's support is focused on a Trauma Informed Care (TIC) approach.

JOL educates and equips you to parent effectively in your baby's unique journey.

JOL educates and equips you to parent effectively in your baby's unique journey.

Journey of a Lifetime (JOL) provides a comprehensive case management response to a perinatal diagnosis that is trauma informed, parent centered, research based, and life-affirming.

Journey of a Lifetime (JOL) provides a comprehensive case management response to a perinatal diagnosis that is trauma informed, parent centered, research based, and life-affirming.

Perinatal Palliative Care

Perinatal Palliative Care allows parents to seek and continue curative or life-prolonging treatment for their baby, following an adverse diagnosis. It is concurrent with existing medical care.

NICU Care

The NICU (Neonatal Intensive Care Unit) provides life supporting medical care and treatment for newborns (neonates) and infants with medical issues and/or needs.

Client Testimonials

Savannah’s Journey

Savannah’s Journey

“Savannah had Trisomy 18, a life-limiting diagnosis. But her life – short as it was – was so worth living.”

Raphael’s Journey

Raphael’s Journey

“Her name is Raphael. It means ‘the Lord heals’…We know that He can heal Raphael now, but even if He doesn’t that doesn’t change anything for us.”

Ima’s Journey

“You helped us be as prepared as we could be for Ima’s beautiful arrival…”

Request Support or Refer a Parent

Request JOL Support

Journey of a Lifetime (JOL) does not provide any medical care or treatment (e.g. prenatal or postpartum medical care; high risk obstetrics or maternal fetal medicine; mental, emotional, or behavioral health; does not prescribe, or refer for birth control/contraceptives or devices, remove IUDs; provide fertility testing or treatment for infertility; replacement or gender reassignment hormone therapy; does not provide vaccinations or immunizations; does not provide prenatal or genetic testing; and does not perform or refer for abortion services. This website is not intended to be direct medical, legal, or ethical advice for your specific situation. Please contact your physician, attorney, or clergy for additional help. If this is a medical emergency, please dial 911 or go to the nearest emergency room immediately. Journey of a Lifetime (JOL) accepts no liability for the consequences of any actions taken on the basis of the information provided. Journey of a Lifetime (JOL) provides life-affirming trauma informed care - including, but not limited to educational, emotional, spiritual and tangible support, advocacy, chaplaincy, and pastoral care - for moms and families that have received a life-limiting or other adverse perinatal diagnosis.

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